Welcome
Hello and welcome to our website. Our goal is to do what we can for Alex Jordan and her family to help make things a little easier. Please visit our Events page for the Benefit on September 26th.
About Alex
Alex’s history with epilepsy began while in her pediatrician’s office undergoing routine exam prior to entering kindergarten. Alex’s mother – Angela – noticed that she was acting strange (she was turning around in circles). The pediatrician dismissed her behavior as just a little girl playing. However, Angela knew something wasn’t right with her daughter; upon subsequently having numerous additional episodes (which later were identified as seizures) later that day after leaving the pediatrician’s office, Alex was rushed to the emergency room at Kosair’s Children’s Hospital in Louisville, KY.
During the next five years, Alex endured multiple stays at the hospital in Louisville, was referred to the Children’s Hospital in Cincinnati, OH, and was examined by numerous doctors. Also during this time, Alex was given every possible combination of anti-seizure medications on the market, had surgery to receive a VNS implant, and attempted the Ketogenic diet regimen. Nothing worked and Alex was advised that her seizures would not be controlled by medication.
Upon relocating to Wisconsin in 2007, Alex went under the care of Milwaukee Children’s Hospital. After 2 years of intense testing, Alex’s family was notified that she may be a candidate for brain resection surgery (a procedure in which the impacted area of the brain is “scooped out”). The past several months have consisted of numerous additional tests to assist in further evaluating Alex’s suitability for surgery.
Alex’s family received notification in early August 2009 that she met the requirements for surgery and is now in the final stages of being scheduled for surgery. Though brain surgery is a very intimidating prospect, the hope is that Alex’s seizures may be completely eliminated.
Alex is a beautiful 13 year old young lady in the 8th grade at Christian Life School in Kenosha who has epilepsy. Having epilepsy means that, though appearing like any other 13 year old girl, Alex has seizures. Alex may go days with no seizures, however, other days she may have more than 100 seizures within a few hours. Alex wants to be a “normal” teenager. She dreams of going for a walk, going to the pool, going to movies with her friends, etc. without worrying about possibly having a seizure. All of these seemingly innocent activities don’t happen for Alex unless careful precautions are taken in advance.
Alex lives in Strawberry Creek with her parents (Ed and Angela Jordan) and her sheltie (Lilo).
Recent News
On 8/22/2009, we launched our new website. We invite you to take a look around the website and tell your friends to come see us too by using our new Spread the Word website tool.